Health | Greater than PMS: A poorly understood disorder causes periods of despair in some women

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For probably the most part, Cori Lint was glad.

During the day she worked as a software engineer and at night as a part-time cellist. She spent her free time rollerblading, gardening and having long conversations with friends. But on a couple of days a month, Lint's mood was at all-time low. She suddenly began having panic attacks. She also had suicidal thoughts.

Diagnosed with anxiety and depression, Lint, 34, who splits her time between St. Petersburg, Florida, and Tulsa, Oklahoma, struggled to make sense of her experiences — a spot so wide she felt like two different people.

“When I got better, it was like looking back on someone else’s experience, and it was incredibly confusing,” Lint said.

Then, in 2022, she realized her symptoms were cyclical. Lint recognized a pattern in something her doctors hadn't taken into consideration: her period.

For many years, a scarcity of investment in women’s health has led to gaps in medical care. The problem is so widespread that President Joe Biden this 12 months signed an implementing regulation to advance research and innovation in women's health.

Women are less likely than men to receive an early diagnosis for diseases starting from heart disease to cancer. Studies have foundand so they usually tend to have their medical concerns rejected or misdiagnosed. Since diseases that specifically affect women have been little researched for a very long time, much continues to be unknown concerning the causes and treatment options.

This is very true with regard to the results of menstruation on mental health.

As Lint searched the web for answers, she learned a couple of debilitating condition on the intersection of mental and reproductive health.

Sounds like me, she thought.

What is PMDD?

Premenstrual dysphoric disorder (PMDD) is a negative response of the brain to natural hormonal changes within the one to 2 weeks before menstruation. Symptoms are severe and may include irritability, anxiety, depression, and sudden mood swings. Other symptoms include fatigue, joint and muscle pain, and changes in appetite and sleep patterns. Symptoms improve once bleeding starts.

Unlike the mild symptoms of premenstrual syndrome (PMS), the results of premenstrual dysphoric disorder are life-changing. It is estimated that victims can almost 4 years of incapacity to workcumulatively, over the course of their lives.

Although researchers estimate that dysphoric disorder affects about 5% of all menstruating women—roughly the identical percentage of girls with diabetes—the condition is comparatively unknown even amongst medical professionals.

In one 12 months 2022 Survey of PMDD patients According to a study published within the Journal of Women's Health, greater than a 3rd of participants said their primary care physician knew little about premenstrual disorder or its treatment, and about 40 percent said the identical was true of their psychotherapist.

Reproductive mental health has been marginalized as a specialty, said Jaclyn Rossa clinical psychologist who serves as deputy director of the CLEAR Lab on the University of Illinois-ChicagoFew health professionals receive training or are even aware of those disorders, Ross said.

“If you don't take the menstrual cycle into account, you run the risk of misdiagnosis and missing what's really going on,” Ross said.

That was the case for Jenna Tingum, 25, of Tampa, Florida, who experienced panic attacks and suicidal thoughts as a medical student on the University of Florida. It wasn't until her college friend examine PMDD online and noticed that Tingum's symptoms were getting worse in the times before her period that Tingum talked to her gynecologist.

“I don’t think I would have ever put the pieces together,” Tingum said.

Suicide risk and treatment

Because few researchers study the condition, the reason for PMDD stays a mystery and there are still few treatment options.

It was not until 2013 that the disorder was included within the Diagnostic and Statistical Manual, the handbook utilized by medical professionals within the United States to diagnose psychiatric illnesses. PMDD was officially recognized by the World Health Organization in 2019, although references within the medical literature date back to the Sixties.

In a study, 72% of respondents with this disorder reported said they’d suicidal thoughts of their lives. And 34% reported having attempted suicide, in comparison with 3% of the final population.

Marybeth Bohn lost her daughter Christina Bohn to suicide in 2021. It was only within the months before her death at age 33 that Christina connected her extreme distress to her cycle – no doctor had asked, Bohn said. Now Bohn, who lives in Columbia, Missouri, is working with medical and nursing schools across the country to alter curricula and encourage doctors to ask people in mental health emergencies about their premenstrual symptoms and cycles.

“We need to do more research to understand how and why these responses to hormones occur,” Ross said. “There is still so much work to be done.”

Although doctors haven’t yet agreed on a universal approach to treating symptoms, three foremost treatment methods have emerged, said Rachel CarpenterMedical Director of Reproductive Psychiatry on the University of Florida–Jacksonville College of Medicine.

Selective serotonin reuptake inhibitors, probably the most common type of antidepressant, are the primary line of attack, Carpenter said. Some patients take the drug commonly, others only throughout the week or two that symptoms appear.

In some patients, hormonal contraception can relieve symptoms by controlling or stopping the discharge of certain hormones.

Finally, talk therapy and cycle awareness may help patients construct mental resilience for difficult weeks.

Sandi MacDonald, co-founder of International Association for Premenstrual Disordersa number one resource for patients and physicians, said peer support is on the market through the nonprofit organization, but funding for research and education stays elusive.

She hopes the White House's recent initiative to advertise women's health research will open doors.

Let's speak about periods

Both Lint and Tingum, who were diagnosed by healthcare professionals after learning concerning the disorder themselves, said a scarcity of debate about periods contributed to delays of their treatment.

Lint doesn't remember periods being talked about much in elementary school; they were often the topic of jokes and used to denigrate women.

“For a long time I thought, 'This happens to everyone, right?'” Lint said of her symptoms. “Has a doctor ever asked me what my symptoms are like? No, absolutely not. But we're talking about a quarter or more of my life.”

Brett Buchert, a former University of Florida athlete who stayed away from campus for some time due to severe symptoms, said that when doctors ask questions, it might probably feel like they're just checking boxes: “That ends the conversation.”

Buchert, who has a level in psychology and now lives in Boulder, Colorado, said understanding what was happening to her and pay attention to your cycle helped her to manage together with her illness.

Lint and Tingum agreed.

Although Lint has struggled to seek out a drugs that gives relief, tracking her cycle has helped her stay mindful of her symptoms, she says. She has fewer obligations within the week before her period. She takes more time for herself.

She also found comfort in Read other people's stories live with the disease, she said.

“It helped me process the extremes,” Lint said. “There's nothing wrong with me as an individual. I'm not crazy; this is something that really happens to me. It helps to know that I'm not alone.”

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